A Search for Solutions: A Gathering on Palliative and End-of-Life Care for First Nation, Inuit and Metis

November 15th - November 16th

Description

In Canada, and internationally, there is a growing need to improve access to palliative and end-of-life care for Indigenous populations. The First Nation, Inuit and Metis (FNIM) population is continuing to age, face an increased burden of chronic disease, and experience greater health disparity compared to the non-Aboriginal population, generating a growing demand for culturally appropriate services.
 
GIPPEC has collaborated with FNIM leaders in health and the community to develop a symposium. Dr. Michael Anderson, Indigenous Physician, has been leading the planning of this symposium. The purpose is to bring together a diverse cross section of stakeholders from government, health and the community to discuss palliative and end-of-life care needs for FNIM peoples and to consider approaches to improve access to services.
 
The first day of the symposium, which explores the current state of palliative and end-of-life care in Canada, is open for registration. The second day, which focuses on building an action plan for Ontario, is by invitation only.

 
Objectives of the symposium

  • Set the current context of palliative and end-of-life care for FNIM peoples

  • Identify challenges faced in rural and urban communities and the drift between them

  • Facilitate discussion on initiatives to improve access to palliative and end-of-life care for FNIM peoples

Registration 

After submitting an online registration, you will recieve an email with a link to payment. To complete the registration, please use the link to submit a payment of $25.

Please note that this registration fee covers only the first day of the symposium on November 15. The second day of the symposium is by invitation only.

Online registration will be close when the registration is full. If you wish to be added to the wait list, please email GIPPEC@uhn.ca

Additional Info

Program

Day One: Setting the National Context

The first day of the symposium will take an interactive format to describe the current state of palliative and end-of-life care nationally, drawing on the unique challenges in urban and rural communities and the drift between the populations. Participants will engage in a facilitated discussion on current challenges and emerging opportunities. Day one of the symposium will be held in the BMO Conference Centre.

8:00-8:30

Registration & Networking (light breakfast will be served)

8:30-8:40

Elder to Open

Speaker: Chief R. Stacey LaForme, Chief of the Mississaugas of New Credit 

8:40-8:50

Welcome to Territory

8:50-9:00

Welcome & Overview of the Day

Speaker: Dr. Gary Rodin, Director, GIPPEC, and Dr. Michael Anderson

9:00-10:00

Keynote Speaker (Interactive: 45 minutes followed by 15 minute discussion)

Speaker: Carrie Bourassa, Chair in Northern & Indigenous Health and Senior Scientist, Health Sciences North Research Institute

Topic: Overview of the National Context

10:00-10:30

Canadian Virtual Hospice's Indigenous Voices Project

Speakers:  Kali Leary, Director of First Nations, Metis & Inuit Cancer Control and the Underserved Populations Program at CancerCare Manitoba & Sherry Cory, Executive Director, Canadian Virtual Hospice

Topic: Overview of the Indigenous Voices Project and Tools Developed

10:30-10:45

Break

10:45-11:15

Developing Palliative Care Programs in First Nations Communities Workbook

Speaker: Holly Prince

Topic: Improving End-of-Life Care in First Nation Communities

11:15-11:45

 

Palliative Care Services, a Community Perspective

Speaker: Maxine Crow, Coordinator of Naotkamegwanning's Home and Community Care Program

Topic: To hear from a First Nation community in Northern Ontario that has created the "Developing Palliative Care Programs in First Nations Communities Workbook

11:45-11:55

Personal Story

Speaker: Leah Bergstrom, Aboriginal Patient Navigator, North Simcoe Region

11:55-12:55

Lunch

12:55-2:15

 

 

Panel Discussion (Interactive: Panel, Question and Answer)

Speakers:

  • Holly Prince, Project Manager and a Co-Investigator on the Improving End-of-Life Care in First Nations Communities Project, Lakehead University (half hour)
  • Bernice Downey, Regional Aboriginal Cancer Lead, Toronto Regional Cancer Program
  • Dr. Michael Anderson, Indigenous Physician
  • Carrie Bourassa, Associate Professor, FN University, Saskatchewan

Moderator:  Dr. Camilla Zimmerman, Head of Palliative Care, UHN

Topic: Setting the National Context, discussion on urban and rural challenges, and the drift between the two, in accessing palliative and end-of-life care services.

2:15-2:30

Break

2:30-3:30

Facilitated Group Discussion (Interactive)  - Break out from the Panel

Moderator:  Bernice Downey, Regional Aboriginal Cancer Lead, Toronto Regional Cancer Program

3:30-3:45

Elder Closing

 

 

Day Two: Building an Action Plan for Ontario (By invitation only)

The second day will consider approaches to improve access to palliative and end-of-life care for FNIM peoples in Ontario. Speakers will describe the current challenges in Ontario, outline areas of opportunity through case scenarios and facilitate discussion on short, medium and long-term initiatives to build the formulation of an action plan. The second day of the symposium is by invitation only. It will be held in the Faculty Club of the University of Toronto.

9:00-9:30

Registration & Networking (light breakfast will be served)

9:30-9:40

 

Welcome & Overview of the Day

Speaker: Dr. Gary Rodin, Director, GIPPEC, and Mike Anderson

9:40-10:00

Welcome from Ontario Palliative Care Network

Speakers: Melody Boyd, Provincial Clinical Co-Lead OPCN

Topic: Overview of OPCN and their mandate

10:00-10:10

Personal Story

Speaker: Joanna Vautour, Aboriginal Patient Navigator, Toronto Regional Cancer Program

10:10-10:40

Palliative and End-of-Life Care, FNIM Challenges in Ontario

Speaker: Alethea Kewayosh, Director Aboriginal Cancer Control Unit, Cancer Care Ontario

Topic: Overview of current challenges in Ontario, CCO’s role, emerging opportunities.

10:40-10:55

Break

10:55-11:40

Case Studies

Speakers: Leah Bergstrome, Aboriginal Navigator, North Simcoe Muskoka & Sherri Baker, Aboriginal Navigator, Northeast

Moderator: Dr. Carole Mayer, PhD, RSW, Director, Research and Regional Psychosocial Oncology Lead of the Supportive Care Program at the North East Cancer Centre, Health Sciences North, in Sudbury ON

Topic: A review case studies from two regions followed by a moderated panel discussion.

11:40-12:10

Palliative Care Services, a Community Perspective

Speaker: Lori Monture, Manager of Six Nations Home and Community Care/Long-term Care

Topic: To hear from an Ontario First Nation community that has created the "Developing Palliative Care Programs in First Nations Communities Workbook"

12:10-1:10

Lunch

1:10-2:10

Facilitated Discussion – Building an Action Plan for Ontario (Interactive: Discussion)

Facilitator: Bernice Downey, Regional Aboriginal Cancer Lead, Toronto Regional Cancer Program

Topic: Facilitated discussion on short, medium, and long-term initiatives.

2:10-2:25            Break

2:10-3:25

Synthesis Building an Action Plan for Ontario (Interactive: Discussion)

Facilitator: Bernice Downey, Regional Aboriginal Cancer Lead, Toronto Regional Cancer Program

Topic: Synthesis of facilitated discussion, pulling out tangible points to build an action plan.

3:25-3:35

Personal Story from Christian Island

Speaker: David Sylvester, Patient from Christian Island

3:35-3:45

Closing

Speaker: Dr. Michael Anderson

Location

Venue:   BMO Education & Conference Centre on the Toronto Western Hospital Campus - Krembil Discovery Tower, Main Floor

Address:  60 Leonard Avenue, Toronto, ON M5T 2S8

Related Info

Gary Rodin

Director, GIPPEC

The Princess Margaret Cancer Centre, University of Toronto

Alethea Kewayosh

Director

Aboriginal Cancer Control for Cancer Care Ontario (CCO)

Bernice Downey

Medical anthropologist

McMaster University

Caitlin Doherty

Strategic Planning

Princess Margaret Cancer Centre

Camilla Zimmermann

Head of Palliative Care

University Health Network

Carole Mayer

Director of Research and Regional Psychosocial Oncology Lead and Symptom Management Lead

Northeast Cancer Centre

Carrie Bourassa

Professor

First Nations University of Canada

David Sylvester

Councillor

Beausoleil First Nation

Holly Prince

Project Manager

Lakehead University

Joanna Vautour

Aboriginal Patient Navigator

Toronto Regional Cancer Program

Kali Leary

Director of First Nations, Metis & Inuit Cancer Control and the Underserved Populations Program

CancerCare Manitoba

Leah Bergstrome

Aboriginal Patient Navigator

Simcoe Muskoka Regional Cancer Program

Lesley Chalklin

Project Coordinator

Princess Margaret Cancer Centre and GIPPEC

Lori Monture

Manager

Six Nations Home and Community Care/Long-term Care

Louise Lee

Education Specialist

Princess Margaret Cancer Centre

Maxine Crow

Coordinator

Naotkamegwanning's Home and Community Care Program

Melody Boyd

Clinical Nurse Manager

North Simcoe Muskoka Hospice Palliative Care Network

Michael Anderson

Indigenious Physician

Shelly Cory

Executive Director

Canadian Virtual Hospice

Sherri Baker

Aboriginal Navigator

Northeast Cancer Centre

Stacey Laforme

Chief

Mississaugas of the New Credit First Nation

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